Friday

     Dani and I have been in town all day for our Fortnightly Marketing Peregrination.  It’s always a long day for us, but I’m reminded that the wife of Proverbs 31 fame was praised for being like a merchant ship, bringing her food from afar.  We were home just before 8:00 this evening, just in time for Dani to head to the neighbors.  She and her brothers are caring for the neighbor’s horses, dogs and cats while they are aware for a few days. 
    
       Copper stayed home with the boys today.  The boys finished up the week’s homeschooling and my husband continued the work of painting the boys’ room.  It looks great, and it may yet be done before he returns to work next week.  It’s been a long, full day for all of us.  
    
     Without dwelling forever and  a day on Tourette Syndrome, I felt a need to clarify for all of you what Tourette Syndrome is and what it is not.  Tourette Syndrome is not just a single tic or two.  Rather, it’s a variety of multiple, physical (motor) tics combined with verbal (words, vocal noises) tics.  Though the motor and verbal tics need not be present at the exact same time, they frequently are, and both must occur for there to be a diagnosis of TS. 

     It’s also helpful to note that TS is quite frequently, but not always, accompanied by another neurological disorder of some sort, conditions considered “co-occuring” with the TS.  Co-occuring conditions might include OCD, ADHD, etc.  We all have, had, or will have a tic of some sort during our lives, and we certainly do not all have Tourette Syndrome.  There are a variety of other tic disorders out there, too.  Tourette Syndrome cannot be self-diagnosed.  TS is a neurological disorder and must be diagnosed by a neurologist, or similarly qualified M.D., and the symptoms must conform to a particular set of established criteria.  Any co-occuring disorders must be similarly diagnosed.  Those with a genuine interest for more information can visit the Tourette Syndrome Association.

      There have also been a couple of questions about why we had William diagnosed.  It’s a bit complex, but still easy to answer.  We had William visit a neurologist several years ago because we wanted a diagnosis to be on his medical record.  You see, many Touretters run into problems later in life because of their tics.  A four year old boy who says “Whoop, Mama!” really loudly behind the lady at Wal Mart is easily forgiven.  Not so a grown man. 

      Similarly, a man who is experiencing a heavy load of physical tics might give the impression to law enforcement of being under the influence of drugs or alcohol.  Having a diagnosis on his medical chart won’t stop the police from questioning him, or even from arresting him; but it would be helpful in clearing him of any possible charges.  I know that might sound like courting trouble in advance, but I see it more as establishing a a safety net for him well in advance of it being necessary.

     After such a long outing in town today, it was nice to come home, pour a glass of something cold, and enjoy the spring evening on the front porch with my husband.  With the rains behind us at last, I think, it’s time to spend some time cleaning and prettying up the front porch for the coming warm weather months.  I’ve missed spending time there!

God bless you as you look well to the ways of your household!
Proverbs 31:27
 



Be Sociable, Share!

5 comments to Friday

  • Goodness it has been a long time since I read your blog, I will be praying for your family. 🙂 (((hugs))) to you my dear sister.

    ~*~Megan~*~

  • I know the reason Stephanie’s friend who is a psychologist wanted Elizabeth tested was because she has quite a few OC tendencies but I think her only other symptoms are when she shakes her hands and can’t control them.  Right now they are just watching her to see if any other symptoms come up because the shaking hands could be just a nervous habit.

    I just love the way you and your hubby are laying a good foundation for your son.  Not only with education but by building him and giving him strength so when he does go out into the world, he will be ready.  He will enter the adult world with plenty of good things in his emotional bank, rather than having been drained all his life as would have happened in school.

  • Hello Miss Cheryl and Family, I have just spent some wonderful minutes catching up with you all..whew..you all have been busy! Cheryl, I am not sure if this is any help or not, but I have had lots of experience with steroids (yuck…poor Baby) and antibiotics and something that has made a HUGE difference for me was to take doses of acedolphilus (sorry, my spelling is bad LOL) along with the antibiotics and then daily for several months afterwards. Most antibiotics have warnings that they can cause severe intestinal problems for up to six months after you are done taking them and this has helped make that a problem I never had to deal with. It also wipes out the runs within an hour or so if you take it right away, just thought I would throw that in LOLOL.

    But I digress, I always do….anyhoo, I am so glad you Baby is feeling better. You know, because of your blog, when I see an older child acting up in public I always try to take the time to remind myself it could be you with your Son who is courageously battling thing I have never had to..and try to smile at the parents. Never thought about it before, but it doesn’t always mean a bad parent or a bad child.

    Also, boy your Husband is nearly as wonderful as mine (sorry, I am biased LOL) to be doing all that work during his vacation. I can’t wait to see what the rooms turn out like! How exciting! The General has taken many “working vacations” himself, poor guy 🙂

    Many Blessings 🙂

    Ace

  • Oh, one more thing 🙂 The last few posts have reminded me about a scene in the move Ray (with Jamie Foxx). When Ray turned blind he was very scared and in one scene he is in his home and he falls down and is calling for his Mother. She doesn’t answer him, she just sits and watches him. Refusing to even let him know she is there. And at first I was HORRIFIED, then you see tears rolling down her cheek. Then you see him slowly feel around, find his way to his feet and figure out how to walk with out falling and get up without help and you realize what she is doing. It would have been much, much easier on HER if she had always helped him up…but it was much much better of her to prepare him to fall and get up without anyone’s help. Amazing! So much of Motherhood is teaching for a time when we will NOT be there, preparing for a time when no one will help our children…pointing them to the only one who they can take with them anywhere…Christ!

    It is so hard to be a Mother, a truly good Mother. Often when we are sowing into our children’s lives the enemy torments us, send others to try to drown out the Lord’s voice, trys to take the seeds away. Makes us feel like the harvest will never, ever come…that we will fall dead of exhaustion before we ever make it that far. But that is a lie. Any difficulty you are having, God knew of it before and knew you were just the Mama who would know to drop to her knees in prayer and would trust Him and wait on Him for these Children. They are blessed to have you.

    I will pray for you and yours as well.

    Many Blessings 🙂

    Ace